NCT04863859 · RECRUITING
Persons With Dementia and Their Extended Family Caregivers
This study is not a clinical drug or device trial. Researchers are interviewing extended family caregivers of people living with dementia to learn how they manage care, what services they use, and what gets in the way. Participants do a phone interview and a short daily diary for eight days. The goal is to improve how support services are delivered to caregivers and the people they care for. No phase designation applies here.
You may qualify if
- Speaks/reads English
- Resident of Virginia, North Carolina, Maryland, West Virginia, Tennessee, Kentucky or Washington, D.C.
- Age 18+
- Is either the grandchild, sibling, niece/nephew, step-kin, adult child or spouse of the person living with dementia
- Is providing hands-on care and/or overall management of care for a person living with dementia in the community
- Caregiver co-resides with the person with dementia or has face-to-face contact with the person with dementia at least 3 days/week
- Has no difficulty talking/hearing on the telephone
You're excluded if
- Caregiver of persons with mild cognitive impairment
- Person with dementia lives in service-enriched housing such as a continuing care community, or residential facilities, such as assisted living facilities or nursing homes
The sponsor's own eligibility wording, lightly reformatted. The study team makes the final eligibility decision — worth discussing with your doctor.
Eligibility criteria as of 2025-09-22